Great, short piece about him and his family in the NY Daily News.
Matt and his wife Mamie are terrific people. Matt chaired the most recent PKD Gala in New York, where he spoke movingly of his hope that his sons haven’t inherited the disease that took his mom’s life and now threatens his. He’s worked hard to raise awareness of PKD. It’s too late for him to benefit from experimental drugs like Tolvaptan; his kidneys are too far gone.
If you know anyone who might want to donate a kidney, please let me know. We want Matt to stick around. He’s only 41, for heaven’s sake …